Wednesday, 29 April 2015

How Am I?

I was asked today how I was doing. I never really know how to answer that question, especially after a relapse. I'm doing well? I'm good compared to how I was? I'm feeling better now but not all the way better? Do I delve into details of my lingering issues?  The fact of the matter is I feel better than I did a month ago.  Much better. I am out of my relapse but not fully back to how it was before it started again.  I had an MRI done and I had one lesion on my spine that was larger than before, however it was no longer "active". That was the cause of ALL the drama!  Sometimes it's hard to wrap my brain around it.  How one tiny problem can cause such distress on the body.

There are lingering problems, mostly with numbness in my hands, but for the most part I feel good.  Good for what I'm used to. I need to give it a few more weeks to see if the feeling will come back, or maybe even longer.  I pray these new meds stop the frequency of my relapses, but the nurse said some people just struggle with getting the MS to settle down.  I hope that's not the case for me although that's the pattern so far.  I want to have years not months in between them. I'm on a second line drug as it is and next is a third line drug.  I honestly didn't know there was such a thing. I thought chemo was for cancer patients, but apparently if you arent responsive to the MS drugs that's the third route. So I pray I will be "fine" for at least one year and then I'll know these drugs are working.

If you're reading this please go to and search my name to donate. Donate what you spend on ingredients for a bake sale or for making cupcakes for your kids birthday at school. I'd ask you to dump ice on your head and make a donation but most of you have already done that.

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